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Diagnosis Directory


  • The ACC Network -This organization provides information, resources, support, and peer stories for children born with Agenesis of the Corpus Callosum (ACC). You may contact them at (voice) 207-581-3119 or email them at

  • Angelman Syndrome Foundation -This national website provides information, research, and education regarding Angelman Syndrome. It offers help and support to families and friends of people with this syndrome.

  • Asperger Disorder -This national site was developed by a Massachusetts physician to provide answers to commonly asked questions.

  • Autistic Spectrum Disorders Publication- This page, from the California Developmental Disabilities Council, is a great resource for parents, practitioners, and policy makers about the evaluation and treatment of Autism Spectrum Disorders.

  • Brain Injury Resource Center -This site has lots of information about acquired and traumatic brain injury and how it affects adults and children. Scroll down the page to see the heading topics on the left side.

  • CDC-Autism Information Center -The information center includes: information about autism spectrum disorders; activities of CDC and other federal agencies; state activities funded by CDC; education, services, and research resources; and activities to help children use the Internet to learn more about autism spectrum disorders.

  • Fountain graphic HIV/AIDS Information — One of the most comprehensive sites on HIV/AIDS, it has links to discounted prescription drugs, an "ask the experts" section, treatment information for those who are newly diagnosed and those who have been living with AIDS.

  • MAAP Services for the Autism and Asperger Syndrome -MAAP is a nonprofit organization that provides information and advice to families of more advanced individuals with autism, Asperger's syndrome, and pervasive developmental disorder (PDD).

  • Marfan Syndrome — This is a national website which defines Marfan's Syndrome and provides resources on-line and in print. There is a contact for a Support Group in Maine.

  • Schizophrenia: A Handbook for Families - This is a large website with comprehensive information on diagnosis, treatment, and information about schizophrenia.

  • Sensory Integration Resource Center -Based at the University of Colorado Health Sciences Center, this site offers information to improve the quality of life for children, adolescents and adults with sensory integration dysfunction (DSI).

  • Subtle Brain Injury -This site explains the symptoms and risk factors for brain injury that is not a result of a trauma or head injury.

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  • American Academy of Allergy, Asthma and Immunology -A great resource for parents to learn about a variety of allergies and asthmas.

  • Fountain graphic Family Doctor - The American Academy of Family Physicians sponsors this site. You can search on a variety of topic areas: symptoms, conditions, diseases. If you're not sure of a medical term, you can enter it into their "dictionary" to find out what it means.
  • Genetics Home Reference -This is the National Institute of Health's website for consumer information about genetic conditions and the genes responsible for those conditions. You can search by disease or condition. There is also a glossary of definitions of technical terms.

  • Fountain graphic Healthfinder - Healthfinder has a searchable library with information on prevention, wellness, diseases, conditions, alternative medicine, insurance, ratings of organizations, online check-ups.
  • Healthgate's Mental Health Guide — The Mental Health Guide is a comprehensive and concise guide to mental health conditions and medical procedures.

  • Fountain graphic Maternal and Child Health Library — This is a huge, searchable database in A-Z format.
  • Fountain graphic Mental Health Information — This is not the most easy site to use. First click on the condition you are interested in and then repeat this on the next page. You will find descriptions of the conditions, treatment, and research. There is a section that requires payment to access more information.
  • Fountain graphic Mental Health InfoSource — Intended for providers, this site may also be useful to consumers. Go to the "A-Z Disorder Index" to find information on mental health conditions.
  • Fountain graphicNational Library of Medicine -This site is a searchable database where you can access information on any medical condition.
  • Now You Have A Diagnosis: What's Next? -This guide can help you to find out more about your diagnosis and evaluate information to make treatment decisions. Click on the links to the left of the text to view more.
  • Fountain graphic Office of Rare Diseases -The Office of Rare Diseases (ORD) in the National Institutes for Health provides information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.

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