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Advocacy Organizations - National

Here are many organizations that do advocacy on a national level. Also look under "Living in the Community - Elders" or " Living in the Community - Parent Resources" for other helpful organizations. Contact Us to let us know if there are other helpful organizations that should be listed here.



American Diabetes Association - The American Diabetes Association is a nonprofit health organization providing diabetes research, information and advocacy for people with diabetes.


The ARC - This national organization is of and for people with mental retardation and related developmental disabilities and their families. The site offers facts, contacts, news, discussion board and advocacy updates.


ARC LINK - Know the System - This site offers explanations of federal laws and programs that shape state-based services for people with developmental disabilities.


Brain Injury Association of America - This site has information about treatment and prevention, research, government relations and clear explanations about the types of brain injury.


Deaf & Blind Link - A website devoted to providing information related to children who are deaf & blind. It is designed for parents, educators, and other professionals and has a wide variety of topics at both a national and state level.


Down Syndrome on the Internet — This website is comprised of a variety of links including national organizations, internet magazines, and medical resources related to Down Syndrome.


International Dyslexia Association - Based in Maryland, this site has resources for children, teens, and adults. Sections include common signs, recent research and other resources.


Learning Disabilities Association of America - LDA is a national agency of volunteers, individuals with learning disabilities, families and professionals. The site offers resources and publications and parental support.


LD Resources — This website is an information resource for persons with learning disabilities. It includes articles, a newsletter and a discussion board.


Marfan Syndrome — This is a national website which defines Marfan's Syndrome and provides resources on-line and in print.


American Speech Language and Hearing Association - This site mainly supports speech and language professionals; however, it has public information that can help to understand types of impairments and supports for them.


Fountain graphic Bazelon Center for Mental Health Law - This site provides information for mental health services related to aging, children, the ADA, housing and health care.


C.A.R.E.S. Client Assistance Program - C.A.R.E.S., Inc. administers the federally funded Client Assistance Program (CAP) information, assistance and advocacy to people applying for or receiving services under the Rehabilitation Act. Programs under this Act include Vocational Rehabilitation, Independent Living Services and Projects with Industry.


Consortium for Citizens with Disabilities - This national organization advocates for persons with developmental disabilities to encourage self-determination and inclusion. The site includes public policy updates.


Disabled Women on the Web - This site is designed to provide information, resources and support for women with disabilities.


Interagency Committee on Disability Research - This is a new web site by the government's Interagency Committee on Disability Research (ICDR). The purpose of the site is to gather comments from consumers. Click on "Send your comments to the ICDR." That will take you to a comment form where you can give your ideas about access to technology, education, employment, community life, health care and other needs.


Justice For All - This is an e-mail network you can register for that was formed to defend and advance disability rights and programs in Congress. They will keep you informed of what is happening in current legislature.


Kids as Self Advocates - KASA is a national, grassroots network of youth with special needs and their friends, speaking on their own behalf. The site includes forums for youth to speak out, artwork by youth, and updates on news and rallies.


Mobility International USA - This site is a non-profit organization that empowers people with disabilities around the world through international exchange, information, technical assistance and training, and to ensure the inclusion of people with disabilities in international exchange and development programs.


National Association on Alcohol, Drugs, and Disability - This organization promotes awareness and education about substance abuse with co-existing disabilities. There are various resources available and contact information for peers and other support.


National Association of Protection and Advocacy Systems, Inc. - This is a national association that works to protect the rights of persons with disabilities.


National Council on Disability - This is an independent federal agency that makes recommendations to the President and Congress on issues affecting people with disabilities.


The National Health Law Program (NHeLP) - A good site for practitioners, it provides extensive information on health care law affecting low-income people. The site is updated daily with health law news, legislative analysis, and health law Internet links. Their e-newsletter is short and informative.


National Low Income Housing Coalition - This is a link to the 2002 Advocate's Guide to Housing and Community Development Policy, which keeps advocates current on a wide range of issues, programs, and housing policy.


US Equal Employment Opportunity Commission - This is a national site that has information about laws that prohibit job discrimination.

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